Dr Charles Steward, Patient Advocacy and Engagement Lead for Congenica
Charles has spent most of his career working on the human genome. He spent more than 22 years working at the UK’s Welcome Sanger Institute, where he conducted his research for his PhD. Here, he also led the gene analysis for human chromosome 10 and initiated an international initiative to investigate epilepsy-associated genes. He sits on the Genomics England Participant Panel and is also part of the Simons Searchlight Community Advisory Committee in the USA. Charles joined Congenica around five years ago to help further genomic medicine.
“I was inspired to join Congenica and help further the patient impact of genomics by my two young children who have severe neurological disorders. They have been on numerous genome studies, including the 100,000 Genomes Project but are still waiting for a positive diagnosis. As such, I have a particular interest in patient advocacy and engagement.”
You can read a very brief story about Charles’ daughter using the button below.
You can also read about both his children on the Borne charity website that raises awareness and money for preterm birth using the button below: