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Malisa Rust

Categories: advisory

Malisa is the Associate Director of Patient Engagement at PTC Therapeutics. Malisa has over 14 years of biopharmaceutical experience, which spans from Manufacturing, Quality Systems to Quality Operations. After years in the biopharmaceutical industry, she was diagnosed with Alpha-1 Antitrypsin deficiency, which started her journey with Patient Advocacy. With her in-depth process knowledge from an operations perspective to her own journey as a rare disease patient, Malisa understands the need to bridge the gap between the biopharmaceutical world and the patient population. She loves supporting the community by providing education through advocacy to make a positive impact and drive change for our patient communities. Malisa holds her Bachelor’s degree in Biology with a Minor in Physics from California Lutheran University and her Master’s degree in Management and Leadership from Pepperdine University. In her spare time, Malisa is an active volunteer for RARE Science.

Quote on joining “My father was misdiagnosed with COPD for almost 15 years until he was diagnosed with Alpha-1 Antitrypsin deficiency. My diagnostic journey did not start until I was symptomatic, but my doctors had a road map. In this sense, I was lucky. Not everyone has this opportunity to start with family history. I am excited to be part of Congenica’s Advisory Board because genomics is driving a fundamental shift in rare disease community by giving patients the opportunity to shorten their diagnostic journey.”

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